Privacy Policy

1. 1 General Information
This Privacy Statement applies only to

1.2 Privacy Statement will store any personal information collected from the website in accordance with applicable Irish and European Data Protection legislation. has taken appropriate measures to keep secure and personal information given by users of this site. Information will not be supplied to any third party, unless permission has been provided by the owner.

1.3 What information do we collect and why?
The information collected on this site includes:

1.3.1 A user’s IP address, which is automatically logged by our web server. IP addresses are used to observe users’ interests in this website (number of visits, etc).

1.3.2 Cookies are very small text files saved to your computer used to track user navigation around a website. At, cookies may be used to store information on which features have been seen by a user. They are not cross-referenced with any other information such that an individual person could be identified.

1.3.3 E-mail addresses and/or other contact details which users voluntarily provide in order to:

receive information from and/or our partners
process membership/ donations
Request information from fibroireland
Register for competitions
Participate in discussion forums will not disclose voluntarily provided details to third parties or use the information in any other way without prior consent. On all pages where personal data is collected, specific details on the use of this information will be provided.

1.4 Your rights
You have the right to access your information held by and where necessary, to have it amended. You can also request not to receive marketing information from

1.5 Chartrooms and Forums
Users are reminded that chat rooms and forums are for public discussion. is not responsible for the content posted by users of these services. Any personal information supplied by users during these discussions is widely accessible. does not pre-screen content, but shall have the right (but not the obligation) to access any forum or discussion board and remove or restrict access to any Content on the Service in its sole discretion and without notice. Without limiting the foregoing, shall have the right to access any board and remove or restrict access to any Content that violates its Privacy Policy or that believes is otherwise objectionable.

1.6 Links to other websites
This website contains links to other sites that are completely unrelated to This privacy statement does not apply to these sites nor are we responsible for the content and practices of these websites.

1.7 Directory
Where Health Professionals names, addresses and phone numbers are shown, this is with the permission of the Governing Body and the individual involved.